Taylor Johnson

It started in March 2020 with chest pain and shortness of breath. By mid-July, I was blacking out after taking ten steps from standing up, falling down after walking up just four stairs from exhaustion and a pounding heart, and completely fatigued each day. Lightheadedness, nausea, blacking out, chest pain, pounding heart…it was an everyday experience only alleviated when I was laying down. 

A friend asked if I knew of POTS, but it was never a term I’d heard before. Doing at-home tests by laying down (HR 70 bpm) then standing up (HR 120 bpm), I was convinced this was it. This began the journey of more than eight doctors at four different hospitals/clinics, and a slue of tests including a two-week holter monitor, stress test, multiple echocardiograms, MRI, nerve conduction study, and more. I was finally able to get a tilt table test in June 2021, and at 20 minutes of standing I fully passed out. I was officially diagnosed with POTS with syncope.


Despite being told by my doctors, “Young girls like you will grow out of it”, “You just have a generally fast heart rate”, and to “Probably just cry about it”, my diagnosis confirmed the reality I live each day. Now, I am still trying to find what helps my body, and I stand (well…sit) as an advocate for people with POTS.

Share this page

Share on facebook
Share on linkedin
Share on twitter
Share on email

Stay up to date with us.

Explore all partner resources

Do today by donating today.

There are millions of people suffering from chronic illnesses and associated emotional wellness issues. Help us raise the overall consciousness of these diseases.

Have a question?

LiveOn will be available for download in late 2022