The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.
The Ehlers-Danlos syndromes (EDS) are a group of hereditary connective tissue disorders that are varied in the ways they affect the body and in their genetic causes. Some of the common symptoms seen across the EDS types include joint hypermobility, instability (subluxations and dislocations), injury, and pain, as well as skin and tissue fragility.
Hypermobility Spectrum Disorders (HSD) cause joint hypermobility, instability, injuries, and pain that are not part of another syndrome or condition that can explain these symptoms.
People with EDS and HSD also commonly experience other problems throughout the body, including fatigue, headaches, GI problems, and autonomic dysfunction.
To learn more about these conditions and to connect with others who have been diagnosed with or suspect that they have EDS or HSD:
- Join a virtual support group
- Find a local support group in your area
- Find a doctor or therapist for diagnosis and to help manage your symptoms
- Educate yourself by watching great video content on our YouTube channel
- Get your questions about EDS and HSD answered – contact the Ehlers-Danlos Society Helpline:
You’re not alone in this battle. There are millions of people just like you who struggle every day. Learn more about people’s stories and find the hope you need to live on.